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May 20, 2009

A Day in DC

by Bob Joondeph — last modified May 20, 2009 09:40 PM
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Moonlighting from 3000 miles away.

If you don't know, DRO is part of a national network of Protection and Advocacy organizations.  Our national organization is appropriately called the National Disability Rights Network (NDRN) and is based in Washington, DC.  Every year, the directors of all 57 P&As are called to Washington for a conference.  We hear from federal officials, talk shop, and see colleagues who, in some cases, we have known for decades.

Since Washington is on eastern time, it always turns out that I continue to do my west coast job when it's east coast quitting time.  Today was no exception.

This morning, our group heard from Jeff Crowley who is the Senior Advisory on Disability Policy person in the White House. He said that part of his job is to create a new major AIDS policy and to assist in health care reform efforts.  When asked what it was like to work in the Obama White House, he said that the President does not dictate to staff.  He lets them grapple with issues.  "Great leadership does not eliminate politics and money problems but this president is willing to follow the science in our areas."

After some other issue briefing, I headed off for "the hill" where I met with staff from the offices of Senator Merkley, Senator Wyden and Representatives Schrader and Wu.  Besides talking health reform policy, my major points were the need for more P&A resources, Congressional action to address seclusion and restrain in schools, and blocking a bill that Barney Frank introduced to stop P&As from suing institutions to seek improved conditions.  (I know that last one seems hard to believe, but it's true.)

Then it was moonlighting time.  I went back to the hotel and wrote testimony for two bills that were heard today in the Oregon legislature.  I sent them off via email and then was able to watch part of the hearings on my computer via the legislature's video service.

Finally, I attended a fundraiser for NDRN.  The highlight of the evening was hearing remarks from special guest Lois Curtis.  Ms. Curtis was one of the plaintiffs in the landmark case of L.C. v. Omstead.  That's the case that found that the ADA provides a right to be free of unnecessary institutionalization.  Ms. Curtis was clearly thrilled to be here.

Tomorrow, I have a 7:00 am flight back to Portland where more fun awaits.